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Families from throughout the United States–even from as far away as Uruguay–recently attended clinics for Trisomy 13, Trisomy 18, and other rare genetic disorders at Primary Children’s Hospital.The clinics were offered as part of the SOFT (Support Organization for Trisomy 18 and 13) Conference, which was held in Salt Lake City this year. Primary Children’s […]
0 0 Read moreWith summer vacations in full swing, jetting off to Disneyland or a sandy beach may be a dream come true for your family, but if you have a child with disabilities, a medical, or behavioral condition, flying can be challenging or maybe even impossible. If you do want to fly, here are some general tips […]
0 0 Read moreToday, I join three communities and three families in mourning their loss of three beautiful children. Each child died this week of heatstroke after being left alone or from climbing into an unattended vehicle. Unfortunately, no one is immune to this kind of tragedy. Parents and caregivers can cut down the number of deaths and […]
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